Finding the Few: Combining Clinical Insight, Data and Media to Reach Patients with Rare Diseases
Webinar Date/Time: Thu, Oct 29, 2026 12:00 PM EDT
Patients with rare diseases are among the hardest to find and reach. Join HealthVerity, Good Apple and DeepIntent for a candid discussion on how clinical insight, real-world data and media activation come together to reach the right patients.
Register Free:
Event Overview:
Reaching rare disease patients is one of the toughest challenges in healthcare marketing. Patients often go five to seven years without a correct diagnosis, physicians rarely see enough cases to recognize the disease, and populations are small enough that standard media targeting and measurement approaches fall apart. In this session, experts from HealthVerity and Good Apple discuss how to build audiences grounded in real clinical signals, how the expanded HealthVerity and Symphony Health data ecosystem changes what is possible for rare and specialty conditions, and how to design campaigns that deliver measurable results at small scale. The conversation closes with a real-life case study from HealthVerity and Good Apple, showing how the clinical, data and activation teams turned a rare hematology population into a successful and measurable media program.
Key Learning Objectives:
- Use real clinical signals to build accurate rare disease audiences
- Evaluate data partners for coverage, provenance and refresh cadence
- Design campaigns that produce measurable results at small audience scale
Who Should Attend:
Top targeted audience:
- Brand Directors and Product Marketing Managers (rare disease and specialty portfolios)
- Media Directors and Media Planners at pharma and life sciences companies
- Programmatic Leads and Agency Media Buyers serving healthcare and pharma clients
- DTC Marketing and Omnichannel Leads
Next most relevant audience:
- Commercial Analytics and Insights Leaders
- HCP Marketing and Field Enablement Teams
- Patient Services and Patient Marketing Leads
- Market Access and Value Communication Teams
- Data and Analytics Leaders at pharma companies (CDO, VP Data Science)
Speakers:
James Yang
Head of Media, GM
HealthVerity
James leads HealthVerity's media business, helping pharma brands, agencies and DSPs put the combined HealthVerity and Symphony Health data ecosystem to work across audience targeting, activation and measurement. His focus is how a stronger data foundation changes what pharma can measure and prove. James holds an MBA from UCLA Anderson and is a U.S. army veteran.
Alexa Woodward, Ph.D.
Head of Precision Oncology and Real-World Evidence
HealthVerity
Alexa is a genetic epidemiologist and Director of Strategic Accounts at HealthVerity, where she helps life sciences teams build rare disease cohorts and design research protocols using claims, labs, imaging, genomic testing and clinical notes. Alexa holds a PhD in Epidemiology from University of Pennsylvania.
Neal Fitzsimmons
Sales Director, Media & Agencies
HealthVerity
Neal leads sales for HealthVerity's media and consumer business, partnering with pharma brands and agencies to bring HealthVerity Audiences into rare disease and specialty campaigns. His focus is helping clients turn real-world clinical signals into precision targeting and measurable results.
John Mangano
Health Care Industry Strategist
John is a healthcare industry strategist with two decades of experience helping pharma brands build and measure health media campaigns. He specializes in reaching patients and care teams in rare conditions often overlooked due to scarcity. Prior senior leadership roles at DeepIntent, Healthgrades, Digitas Health and Comscore.
Christopher Appello
Programmatic Supervisor
Good Apple
Christopher oversees programmatic strategy and partnerships for pharma brands at Good Apple, planning and activating campaigns across display, native, video, CTV and DOOH. He has led rare disease and specialty work where audience quality and channel mix require a sharper approach.
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